Who is conducting this research?

• Principal researcher: Martijn Huisman, Amsterdam UMC

• Study funded by: ZonMW (Netherlands Organisation for Health Research and Development)

• Ethical approval number: [Number]

• Study period: [Start date] to [End date]

What is the purpose of this study?

We want to understand how people aged 60-66 experience their path toward retirement, and what helps them stay healthy and continue working until retirement.

What Personal Information Do We Collect?

From the questionnaire:

• Your age, gender, and family situation

• Information about your work and workplace

• Your health and well-being

• Your thoughts about retirement

• Your income and financial situation

If you provide permission, from Statistics Netherlands (CBS):

• Healthcare usage records

• Employment history

• Household income data

• This helps us get a complete picture without making the questionnaire too long

Technical information:

• How long it took you to complete the questionnaire

• Which device you used (computer, tablet, phone)

 What does this mean for you?

• Participation is completely voluntary

• You can withdraw your consent at any time

• Your data will only be used for scientific research purposes

How We Protect Your Privacy?

1. Immediate Protection

• Unique code system: As soon as you submit your questionnaire, we assign you a unique study number (like "HP2025-0157")

• Name separation: Your name and contact details are stored separately from your answers

• Secure storage: All data is stored on secure, encrypted servers at Amsterdam UMC

2. During Analysis

• Anonymous analysis: Researchers analyzing the data only see study numbers, never names

• No identification possible: Individual participants cannot be identified in any analysis

• Secure access: Only authorized research team members can access the data

3. In Publications

• Group results only: We only report results for groups of people (e.g., "60% of participants said...")

• No individual stories: We never publish information about specific individuals

• Statistical summaries: All publications use anonymous statistical summaries

How Long Do We Keep Your Data?

Your survey answers:

• 10 years after study completion (required by Dutch research standards)

• Stored securely at Amsterdam UMC

Your name and contact details:

• 3 years after study completion (in case you have questions)

• Then permanently deleted

After these periods:

• All personal data is permanently deleted

• Only anonymous statistical summaries may be kept for scientific records

Your Rights Under Dutch Data Protection Law (AVG/GDPR)

You have the right to:

1. Access your data

• Request a copy of all personal data we have about you

• Understand how your data is being used

2. Correct your data

• Ask us to fix any incorrect information

• Add missing information if needed

3. Delete your data

• Request complete deletion of your personal data

• This ends your participation in the study

4. Restrict processing

• Ask us to temporarily stop using your data while investigating a concern

• Your data stays secure but isn't used for analysis

5. Data portability

• Receive your data in a commonly used format

• Transfer your data to another organization (if applicable)

6. Object to processing

• Object to how we process your data

• We'll stop processing the data in case of objections

Future Research - Completely Optional

Follow-up studies:

We plan two follow-up questionnaires:

• 18 months after your first questionnaire

• 36 months after your first questionnaire

Your choice:

• Completely optional - you can say no and still participate in the current study

• Can change your mind - you can withdraw from future contact at any time

Withdrawing Your Consent

You can stop participating at any time by:

• Emailing us at: [email address]

• Calling us at: [phone number]

• Writing to us at: [postal address]

What happens when you withdraw:

Immediately:

• No new data collection

• Your contact details are removed from future mailings

• You won't be contacted for our follow-up studies (unless you specifically requested updates)

For data already collected:

• Anonymous data: If your data has already been made anonymous and used in analysis, it cannot be removed (this protects research integrity)

• Identifiable data: Any data that can still identify you will be deleted

• Publications: Data already in published papers cannot be removed, but no new use of your data will occur

No penalties:

• There are no negative consequences for withdrawing

Data Security Measures

Technical protections:

• Encryption: All data encrypted during storage and transfer

• Access controls: Only authorized researchers can access data

• Secure servers: Data stored on Amsterdam UMC's secure systems

 Your Questions and Complaints

Questions about the study:

Healthpath Research Team

• Email: [study email]

• Phone: [study phone]

• Address: [study address]